2nd International NALCN Conference

2nd International NALCN Conference

The Channeling Hope Foundation is excited to host the 2nd International NALCN Conference (NALCN 2025) in San Antonio, Texas, USA, from October 9-12, 2025.

The conference will be hosted at the Hilton San Antonio Hill Country, which offers many resort-style amenities. Book here to access Channeling Hope's discounted rate

Registration and abstract submission are now open! Register by June 1st for early bird rates. Abstract deadline is July 31st.

Here’s what you can look forward to:

NALCN 2025 Schedule

October 9 (Evening):
Informal meet-and-greet for families and scientists who arrive early

October 10-11:
A mix of presentations and events designed for both scientists and families:

    • Scientific Presentations and Working Sessions for researchers
    • Morgan’s Wonderland Visit for Families – The Channeling Hope Foundation will provide transportation and tickets for families. Morgan’s Wonderland is the world’s only ultra-accessible theme park, bringing together guests of all ages and abilities through inclusive play.
    • Clinically-focused Presentations and Roundtable Discussions for families and research physicians
    • Family Support Sessions – Presentations and Q&A sessions to help families understand the genetics of NALCN-related conditions, how to enter data into RARE-X, and ways to get involved in NALCN research
    • Natural History Study data collection from patients/patient families
    • Opportunities to network with scientists and connect with other families

October 12 (Morning):
Time and space for networking and brainstorming

Support

  • We will offer travel scholarships for families and trainees. Scholarships for scientists and clinicians may also be considered. Details about the application process will be shared soon.
  • Families who fundraise may receive additional support. Email nalcn2025@channelinghope.org for details.
  • Childcare services will be available during all conference sessions for both NALCN-affected children and their siblings. We hope this will allow parents and caregivers to participate fully by learning, listening, and connecting with others.

Sponsorship Opportunities

We have four sponsorship levels. Email nalcn2025@channelinghope.org if you'd like to learn more about sponsorship opportunities for the conference.

Get Involved