CHF Family & Friends Webinar

CHF Family & Friends Webinar
You can access this past webinar and all webinars through the family resources page on our website. Subscription is required (free option available).
Family Resources
Information about NALCN Channel-related disorders can be found in this Fact Sheet from the New South Wales Center for Genetics Education. Please log in to access our family resources. Includes conference and meeting recordings, support group links, and more.

We are excited to introduce ourselves and share what we've been working on. We also want to meet you and invite you to get involved.

Please join us:

  • Date: Tuesday October 17, 2023
  • Time: 7:30 pm Central Time (USA). Recording will be available for those who are unable to make this time.
  • Duration: 1 hour
  • Registration Link: https://shorturl.at/gsuP1

Please register to attend. A personalized Zoom link will be provided once you register. The recording and slides will be made available to everyone who register.

Agenda:

  1. Introduction to Channeling Hope
  2. Scientific Update
  3. Collaborations in Development
  4. Fundraising Progress
  5. Ways to Get Involved
  6. Q&A Session

Speakers:

  • Shayanne Martin, Executive Director, CHF
  • Jeremy Tanner, Scientific Director, CHF
  • Suzanne Engel, Director of Partnerships, CHF
  • Diana Duggan, Director of Philanthropy & Fundraising, CHF
  • Jill Wahl, Director of Marketing & Communications, CHF

We look forward to having you join us for our kickoff friends and family webinar!

Best regards,

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