A community of researchers and families driven to advance care and develop treatments for those affected by NALCN-related disorders. (NALCN, UNC80, UNC79, FAM155)
We are thrilled to announce that registration for the 2nd International NALCN Channel & Related Diseases Conference is now open! Join us in San Antonio, Texas, from October 9-12, 2025, for an incredible event dedicated to advancing research and support for NALCN-related conditions. Event Details: * Dates: October 9-12, 2025 * REGISTER
Help Us Make a Difference: Participate in Our Patient Survey Channeling Hope submitted an application for a funded natural history study through Citizen! This study aims to collect, analyze, and de-identify medical records from over 50 patients. As a small community, it's important we hear from everyone! This
Reflecting on 2024, the Channeling Hope Foundation (CHF) is proud to share the remarkable achievements and milestones that marked the year. Our mission to support families affected by NALCN-related disorders and advance research has been propelled forward by the dedication of our patient community, partners, and supporters. Here are some
We are very excited to be launching the RareX Registry to our families! This will be the first patient registry for NALCN-related disorders and will provide a better understanding of the most common and impactful symptoms of NALCN-related disorders. The process for patient data collection is a multi-step process. The
In our last newsletter, we shared highlights from our organization's first year in operation. In this issue, we share what our scientific community has been up to. Expanding research collaborations in Asia Dr. Arnaud Monteil, the Director of CHF's Scientific Advisory Board, was invited to present
