Hall of Remembrance

Julieta Honeyman Reyes

July 2023 - October 2024

A beautiful NALCN warrior, Julieta, was born in Chile and passed away after 1 year and 3 months of life. She was able to come home to be with her loving family before her death. Her Mother Yessenia shared this message with us, "I would like to thank my daughter for fighting for her life until she got home. Against all odds, she managed to get home to say goodbye to her family. It was only three weeks that were enough to fill our home with her presence. She had the best older sister in the world who included her in everything. We are calm because we gave everything and more to accompany her for the year and three months that her life lasted."

Una bella NALCN guerrera, Julieta nació en Chile y falleciódespués de 1 año y 3 meses de vida. Pudo regresar a casa para estar con su querida familia antes que falleció. Su madre Yessenia compartió este mensaje con nosotros: "Quieroagradecer a mi hija por luchar por su vida hasta que regresó a casa. Contra todo pronóstico, logró llegar a casa para despedirsede su familia. Fueron sólo tres semanas las que era suficientepara llenar nuestro hogar con su presencia. Ella tuvo la mejorhermana mayor del mundo que la incluyó en todo. Estamos tranquilos porque dimos todo y más para acompañarla durante elaño y tres meses que duró su vida.”

Carlie Grace Judson

July 25, 2022 - December 22, 2023

In loving memory of Carlie Grace Judson, born on July 25, 2022, in Lawton, Oklahoma. She joined her parents, Steve and Jennifer Judson, in March 2023. The Judson family recently became part of the NALCN community, rallying around Carlie's diagnosis of CLIFAHDD syndrome. Carlie's brief yet impactful presence touched countless hearts, bringing smiles to all who were fortunate to know her. Let us channel hope through remembrance, ensuring Carlie's spirit lives on.

The Judson family has asked that Carlie's spirit live on in pursuit of a brighter future for individuals affected by CLIFAHDD. Their hope is that families have more information to manage the complications of CLIFAHDD. Right now, there are not enough answers. You may give in her memory and join "Carlie's Tribe" here.

If you would like for your loved one to be remembered here, please contact a board member or email us.